TY - JOUR
T1 - A consensus approach to wound care in epidermolysis bullosa
AU - Pope, Elena
AU - Lara-Corrales, Irene
AU - Mellerio, Jemima
AU - Martinez, Anna
AU - Schultz, Gregory
AU - Burrell, Robert
AU - Goodman, Laurie
AU - Coutts, Patricia
AU - Wagner, John
AU - Allen, Upton
AU - Sibbald, Gary
N1 - Funding Information:
Supported in part by an unrestricted educational grant from Molnlycke Health Care .
Publisher Copyright:
© 2012 by the American Academy of Dermatology, Inc.
PY - 2012
Y1 - 2012
N2 - Background: Wound care is the cornerstone of treatment for patients with epidermolysis bullosa (EB); however, there are currently no guidelines to help practitioners care for these patients. Objectives: The objective of this study was to generate a list of recommendations that will enable practitioners to better care for patients with EB. Methods: An expert panel generated a list of recommendations based on the best evidence available. The recommendations were translated into a survey, and sent to other EB experts to generate consensus using an online-based modified Delphi method. The list was refined and grouped into themes and specific recommendations. Results: There were 15 respondents (45%response rate), with significant experience in the EB field (>10 years [67%]). Respondents included physicians (67%), nurses (17%), and allied health professionals (7%). There was more than 85%agreement for all the proposeditems.Thesewere further refined andgroupedinto 5main themes (assessment and management of factors that impair healing, patient-centered concerns, local wound care, development of an individualized care plan, and organizational support) and 17 specific recommendations. Limitations: There is a paucity of scientific evidence with most recommendations based on expert opinion. Conclusions: These recommendations will provide practitioners with a framework for caring for these patients. Additional scientific research including effectiveness studies for everyday practice and expert consensus, may further refine these recommendations.
AB - Background: Wound care is the cornerstone of treatment for patients with epidermolysis bullosa (EB); however, there are currently no guidelines to help practitioners care for these patients. Objectives: The objective of this study was to generate a list of recommendations that will enable practitioners to better care for patients with EB. Methods: An expert panel generated a list of recommendations based on the best evidence available. The recommendations were translated into a survey, and sent to other EB experts to generate consensus using an online-based modified Delphi method. The list was refined and grouped into themes and specific recommendations. Results: There were 15 respondents (45%response rate), with significant experience in the EB field (>10 years [67%]). Respondents included physicians (67%), nurses (17%), and allied health professionals (7%). There was more than 85%agreement for all the proposeditems.Thesewere further refined andgroupedinto 5main themes (assessment and management of factors that impair healing, patient-centered concerns, local wound care, development of an individualized care plan, and organizational support) and 17 specific recommendations. Limitations: There is a paucity of scientific evidence with most recommendations based on expert opinion. Conclusions: These recommendations will provide practitioners with a framework for caring for these patients. Additional scientific research including effectiveness studies for everyday practice and expert consensus, may further refine these recommendations.
KW - Consensus
KW - Epidermolysis bullosa
KW - Guidelines
KW - Wound care
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U2 - 10.1016/j.jaad.2012.01.016
DO - 10.1016/j.jaad.2012.01.016
M3 - Article
C2 - 22387035
AN - SCOPUS:84872680417
SN - 0190-9622
VL - 67
SP - 904
EP - 917
JO - Journal of the American Academy of Dermatology
JF - Journal of the American Academy of Dermatology
IS - 5
ER -