A transplant of real life

Vivian Diaz, Arthur Caplan, Michael Mauer

Research output: Contribution to journalArticlepeer-review

Abstract

A case of steroid-resistant nephrotic syndrome with focal segmental glomerulosclerosis leading to renal failure in a 4-year-old girl is described by her mother, with special emphasis on the problems resulting from recurrence of this disease, with graft loss in three successive kidney transplants. This report chronicles the gradual evolution from a family's initial heavy dependence upon medical solutions to their ultimate primary emphasis upon spiritual values, with medicine seen as the support toward achieving the child's psychological well-being and spiritual growth. The physician's role in balancing medical decision making, non-medical alternatives, and demands on limited and precious resources in such difficult cases is discussed.

Original languageEnglish (US)
Pages (from-to)585-588
Number of pages4
JournalPediatric Nephrology
Volume7
Issue number5
DOIs
StatePublished - Oct 1 1993

Keywords

  • Recurrent disease
  • Resource allocation
  • Spirituality
  • Steroid-resistant nephrotic syndrome

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