Burdens and Educational Needs of Informal Caregivers of Older Adults with Urinary Incontinence: An Internet-Based Study

Nicole J. Davis, Veronica G. Parker, Janice Lanham, Christina R. Love, Margaret R. Christy, Eve Poetzschke, Jean F. Wyman

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose The purpose of this study was to describe the burden and educational needs of informal caregivers of care-dependent older adults with urinary incontinence (UI). Design A cross-sectional, descriptive survey of informal caregivers recruited through Google Ads was performed. Methods An online survey, including the Overactive Bladder-Family Impact Measure, was used to assess five areas of the experience of the informal caregiver that may be affected by caring for a person with UI and their educational needs. Findings Respondents (n = 77) reported a substantial impact of their care recipients' UI on their lives, with concern, travel, and social subscales most affected. However, 42% never sought treatment on behalf of their care recipient. Educational needs included UI treatment strategies and guidance to select appropriate supplies. Conclusions Caregivers underreported their care recipient's UI and need substantially more support from healthcare providers to manage the condition. Clinical Relevance Nurses should assess for UI among care-dependent older adults and, if present, provide information and strategies to lessen the impact on caregiver lives.

Original languageEnglish (US)
Pages (from-to)172-178
Number of pages7
JournalRehabilitation Nursing
Volume46
Issue number3
DOIs
StatePublished - 2021

Bibliographical note

Funding Information:
This study was funded by the Mary Lohr Endowment Grant, Clemson School of Nursing.

Publisher Copyright:
© Lippincott Williams & Wilkins.

Keywords

  • Caregivers
  • cross-sectional studies
  • internet
  • survey
  • urinary incontinence

PubMed: MeSH publication types

  • Journal Article

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