TY - JOUR
T1 - Decisional needs assessment of patients with complex care needs in primary care
T2 - A participatory systematic mixed studies review protocol
AU - Bujold, Mathieu
AU - Pluye, Pierre
AU - Légaré, France
AU - Haggerty, Jeannie
AU - Gore, Genevieve C.
AU - Sherif, Reem El
AU - Poitras, Marie Ève
AU - Beaulieu, Marie Claude
AU - Beaulieu, Marie Dominique
AU - Bush, Paula L.
AU - Couturier, Yves
AU - Débarges, Béatrice
AU - Gagnon, Justin
AU - Giguère, Anik
AU - Grad, Roland
AU - Granikov, Vera
AU - Goulet, Serge
AU - Hudon, Catherine
AU - Kremer, Bernardo
AU - Kröger, Edeltraut
AU - Kudrina, Irina
AU - Lebouché, Bertrand
AU - Loignon, Christine
AU - Lussier, Marie Thérèse
AU - Martello, Cristiano
AU - Nguyen, Quynh
AU - Pratt, Rebekah
AU - Rihoux, Benoit
AU - Rosenberg, Ellen
AU - Samson, Isabelle
AU - Senn, Nicolas
AU - Li Tang, David
AU - Tsujimoto, Masashi
AU - Vedel, Isabelle
AU - Ventelou, Bruno
AU - Wensing, Michel
N1 - Publisher Copyright:
© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved.
PY - 2017/11/1
Y1 - 2017/11/1
N2 - Introduction Patients with complex care needs (PCCNs) often suffer from combinations of multiple chronic conditions, mental health problems, drug interactions and social vulnerability, which can lead to healthcare services overuse, underuse or misuse. Typically, PCCNs face interactional issues and unmet decisional needs regarding possible options in a cascade of interrelated decisions involving different stakeholders (themselves, their families, their caregivers, their healthcare practitioners). Gaps in knowledge, values clarification and social support in situations where options need to be deliberated hamper effective decision support interventions. This review aims to (1) assess decisional needs of PCCNs from the perspective of stakeholders, (2) build a taxonomy of these decisional needs and (3) prioritise decisional needs with knowledge users (clinicians, patients and managers). Methods and analysis This review will be based on the interprofessional shared decision making (IP-SDM) model and the Ottawa Decision Support Framework. Applying a participatory research approach, we will identify potentially relevant studies through a comprehensive literature search; select relevant ones using eligibility criteria inspired from our previous scoping review on PCCNs; appraise quality using the Mixed Methods Appraisal Tool; conduct a three-step synthesis (sequential exploratory mixed methods design) to build taxonomy of key decisional needs; and integrate these results with those of a parallel PCCNs' qualitative decisional need assessment (semistructured interviews and focus group with stakeholders).
AB - Introduction Patients with complex care needs (PCCNs) often suffer from combinations of multiple chronic conditions, mental health problems, drug interactions and social vulnerability, which can lead to healthcare services overuse, underuse or misuse. Typically, PCCNs face interactional issues and unmet decisional needs regarding possible options in a cascade of interrelated decisions involving different stakeholders (themselves, their families, their caregivers, their healthcare practitioners). Gaps in knowledge, values clarification and social support in situations where options need to be deliberated hamper effective decision support interventions. This review aims to (1) assess decisional needs of PCCNs from the perspective of stakeholders, (2) build a taxonomy of these decisional needs and (3) prioritise decisional needs with knowledge users (clinicians, patients and managers). Methods and analysis This review will be based on the interprofessional shared decision making (IP-SDM) model and the Ottawa Decision Support Framework. Applying a participatory research approach, we will identify potentially relevant studies through a comprehensive literature search; select relevant ones using eligibility criteria inspired from our previous scoping review on PCCNs; appraise quality using the Mixed Methods Appraisal Tool; conduct a three-step synthesis (sequential exploratory mixed methods design) to build taxonomy of key decisional needs; and integrate these results with those of a parallel PCCNs' qualitative decisional need assessment (semistructured interviews and focus group with stakeholders).
KW - interprofessional care
KW - patients with complex care needs
KW - primary care
KW - shared decision making
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U2 - 10.1136/bmjopen-2017-016400
DO - 10.1136/bmjopen-2017-016400
M3 - Review article
C2 - 29133314
AN - SCOPUS:85049722510
SN - 2044-6055
VL - 7
JO - BMJ open
JF - BMJ open
IS - 11
M1 - e016400
ER -