Financial and Employment Problems in Families of Children With Special Health Care Needs: Implications for Research and Practice

Wendy S. Looman, Susan K. O'Conner-Von, Gabriela J. Ferski, Debra A. Hildenbrand

Research output: Contribution to journalArticlepeer-review

36 Scopus citations

Abstract

Introduction: The purpose of this study was to identify factors related to financial burden among families of children with special needs and to identify specific provider-level activities associated with decreased risk for such burden. Method: Data for secondary analysis are from the National Survey of Children with Special Health Care Needs (CSHCN). Logistic regression analysis of state-level data was conducted to identify significant predictors of financial and employment problems among families of children with SHCN in Minnesota. Results: Children with more severe conditions and whose family members provided health care at home were more likely to have parents report financial and employment problems due to the child's condition. On the other hand, families whose health care providers communicated well with other service providers and who helped them feel like partners in their child's care were significantly less likely to report financial and employment problems. Discussion: Pediatric nurses and nurse practitioners can use these findings as they work with families for optimal family outcomes. Advocacy and policy implications at state and federal levels also are discussed.

Original languageEnglish (US)
Pages (from-to)117-125
Number of pages9
JournalJournal of Pediatric Health Care
Volume23
Issue number2
DOIs
StatePublished - Mar 2009

Bibliographical note

Funding Information:
Data used for this study are publicly available through the National Center for Health Statistics (NCHS); the analyses, interpretations, and conclusions presented in this manuscript are those of the authors, and not necessarily of NCHS, which is responsible only for the initial data. The National Survey of Children with Special Health Care Needs, 2001, was sponsored by the Maternal Child Health Bureau of the Health Resources and Services Administration and Office of the Assistant Secretary for Planning and Evaluation of the Department of Health and Human Services. We wish to acknowledge The Center for Children with Special Health Care Needs in the University of Minnesota School of Nursing, which is supported in part by the nursing training grant (T80-MC00010), (Title V, Social Security Act) Health Resources and Services Administration, Department of Health and Human Services. Lastly, we thank Linda Lindeke, PhD, RN, CPNP, for her thoughtful review and guidance in the preparation of this manuscript.

Copyright:
Copyright 2009 Elsevier B.V., All rights reserved.

Keywords

  • caregiving
  • child health
  • employment
  • family centered care
  • family nursing
  • financial burden
  • special health care needs

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