Health Care Autonomy in Children with Chronic Conditions. Implications for Self-Care and Family Management

Barbara L. Beacham, Janet A. Deatrick

Research output: Contribution to journalReview articlepeer-review

29 Scopus citations

Abstract

Health care autonomy typically occurs during late adolescence but health care providers and families often expect children with chronic health conditions to master self-care earlier. Few studies have examined the development of health care autonomy as it pertains to self-care and family management. This review links the 3 concepts and discusses the implications for families and health care providers. Case studies are provided as exemplars to highlight areas where intervention and research is needed.

Original languageEnglish (US)
Pages (from-to)305-317
Number of pages13
JournalNursing Clinics of North America
Volume48
Issue number2
DOIs
StatePublished - Jun 2013

Bibliographical note

Funding Information:
This work was supported by grant nos. F31NR11524 and T32NR007100 from the National Institutes of Health , National Institute of Nursing Research and by a grant from the Sigma Theta Tau Xi Chapter, University of Pennsylvania .

Copyright:
Copyright 2013 Elsevier B.V., All rights reserved.

Keywords

  • Autonomy
  • Child
  • Chronic health conditions
  • Development
  • Family management
  • Self-care

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