Health care utilization by adult long-term survivors of hematopoietic cell transplant: Report from the bone marrow transplant survivor study

Sadhna M. Shankar, Andrea Carter, Can Lan Sun, Liton Francisco, K. Scott Baker, James G. Gurney, Daniel G. Weisdorf, Stephen J. Forman, Leslie L. Robison, Marcia Grant, Smita Bhatia

Research output: Contribution to journalArticlepeer-review

33 Scopus citations

Abstract

The high intensity of therapy and prolonged immune suppression after hematopoietic cell transplantation (HCT) increase the risk of long-term complications and health care needs among survivors. The aim of this study was to evaluate the current status of health care utilization by long-term HCT survivors and to identify factors associated with lack of utilization. A total of 845 individuals who had undergone HCT between 1974 and 1998 at age 21 years or older and survived 2 or more years after HCT participated in the study. Health care utilization was assessed through a mailed questionnaire in three domains: general contact with health care system, general physical examination, and cancer/HCT-related visit. The median age at HCT was 38.2 years, and the median length of follow-up was 6.4 years. Overall, 98% of allogeneic and 94% of autologous HCT survivors reported medical contact 11+ years after HCT. Cancer/HCT-related visits decreased with increasing time from HCT (allogeneic HCT, 98-57%; autologous HCT, 94-63%). The prevalence of general physical examination increased with time (allogeneic HCT, 56-74%; autologous HCT, 72-81%). Primary care physicians provide health care for an increasing number of adult long-term survivors of HCT, emphasizing the need for increased awareness of the long-term follow-up needs of the HCT survivors by the health care providers.

Original languageEnglish (US)
Pages (from-to)834-839
Number of pages6
JournalCancer Epidemiology Biomarkers and Prevention
Volume16
Issue number4
DOIs
StatePublished - Apr 2007

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