Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide

Susan M. Wolf, Wylie Burke, Barbara A. Koenig

Research output: Contribution to journalArticlepeer-review

31 Scopus citations

Abstract

Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a "layered" approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation.

Original languageEnglish (US)
Pages (from-to)486-501
Number of pages16
JournalJournal of Law, Medicine and Ethics
Volume43
Issue number3
DOIs
StatePublished - Sep 1 2015

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