Patient-reported outcomes and quality of life assessments are essential to studying conditions such as neurogenic bladder in which multiple management strategies are approximately equally efficacious. Innovations for the treatment of neurogenic bladder need to be guided by both clinical and patient-reported outcomes that are rigorously tested via high-quality prospective cohort or randomized studies. Collaborative research groups in reconstructive urology are critical to the study of uncommon disease processes because they allow studies to be powered adequately, foster innovative treatment strategies through collaboration, and help moderate the risk of investigator and or institutional biases.
Bibliographical noteFunding Information:
Disclosures: Drs S. Elliott, S. Lenherr, J.B. Myers and J. Stoffel receive salary support and B. Welk and Amitabh Jha are paid consultants from the Patient-Centered Outcomes Research Institute (CER14092138). Drs S. Elliott, S. Lenherr, J.B. Myers, and J. Stoffel receive salary support from the Department of Defense grant SCI170051. These grants are focused on spinal cord injury patients and use patient-reported outcomes.
- Neurogenic bladder
- Patient-reported outcomes
- Spinal cord injury