Patient-Reported Outcome Measures for Adult Dental Patients: A Systematic Review

Hina Mittal, Mike T John, Stella Sekulić, Nicole Theis-Mahon, Ksenija Rener-Sitar

Research output: Contribution to journalReview articlepeer-review

19 Scopus citations

Abstract

Objectives: Patient-reported outcomes (PROs) are used beside disease-oriented outcomes (eg, number of teeth, clinical attachment level) to better capture the impact of diseases or interventions. To assess PROs for dental patients (dPROs), dental PRO measures (dPROMs) are applied. The aim of this systematic review was to identify generic dPROMs for adult patients and the dPROs. Methods: This systematic review searched the MEDLINE, Embase, and PsycINFO databases along with hand searching, through December 2017, to identify English-language, multi-item dPROMs that are oral health generic, that is, they are applicable to a broad range of adult patients. Results: We identified 20 questionnaires that contained 36 unique dPROs. They were measured by 53 dPROMs. dPRO names (N = 36) suggested they could be grouped into four dPRO categories: (1) Oral Function (N = 11), Orofacial Pain (N = 7), Orofacial Appearance (N = 3), and Psychosocial Impact (N = 14), as well as an additional dPRO that represented perceived oral health in general. Only eight questionnaires had a specific recall or reference period. dPROM's score dimensionality was only investigated in 13 of the 20 questionnaires. Conclusions: The identified 36 dPROs represent the major aspects of an adult dental patient's oral health experience; however, four major dPRO categories, that is, Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact, summarize how patients are impacted. If multi-item, oral health–generic dPROMs are to be used to measure patients’ suffering, the 53 dPROMs represent current available tools. Limitations of the majority of these dPROMs include incomplete knowledge about their dimensionality, which affects their validity, and an unspecified recall period, which reduces their clinical applicability.

Original languageEnglish (US)
Pages (from-to)53-70
Number of pages18
JournalJournal of Evidence-Based Dental Practice
Volume19
Issue number1
DOIs
StatePublished - Mar 2019

Bibliographical note

Funding Information:
The authors thank Ms. Kathleen M. Patka, Executive Office and Administrative Specialist, and Ms. Shelby LaFreniere, Principal Office and Administrative Specialist, Division of Oral Medicine, School of Dentistry, University of Minnesota, Minneapolis, MN, USA, for proofreading the manuscript. Research reported in this publication was supported by the National Institute of Dental and Craniofacial Research, United States, under the award number R01DE022331.

Funding Information:
Research reported in this publication was supported by the National Institute of Dental and Craniofacial Research , United States, under the award number R01DE022331.

Publisher Copyright:
© 2018 Elsevier Inc.

Keywords

  • Dimensionality
  • Oral health
  • Patient-reported outcome
  • Patient-reported outcome measure
  • Quality of life
  • Questionnaire

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