| Original language | English (US) |
|---|---|
| Pages (from-to) | 1-2 |
| Number of pages | 2 |
| Journal | Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration |
| Volume | 21 |
| Issue number | S1 |
| DOIs | |
| State | Published - 2020 |
Bibliographical note
Funding Information:The first international PLS conference was organized by Teepu Siddique (Northwestern University, USA) in 2004 followed by a UK study day for patients and carers held in 2015 by Martin Turner (University of Oxford, UK). Led by Hiroshi Mitsumoto (Columbia University, NY, USA), several volunteers came together to organize a second international conference on PLS: Nazem Atassi (Sanofi-Genzyme, formerly Mass General Hospital, USA), Lauren B. Elman (University of Pennsylvania, USA), Mary Kay Floeter (National Institute of Neurological Diseases and Stroke-NINDS, USA), Sabrina Paganoni (Massechussetts General Hospital, USA), and Teepu Siddique (Northwestern University, USA). They acquired generous meeting support from NINDS (R13 conference grant), Spastic Paraplegia Foundation (SPF), ALS Association, MND Association, Mitsubishi-Tanabe Pharma, and Biogen Pharmaceuticals. Furthermore, Mr. David Marren and family also provided a kind donation to support this conference. The meeting took place on 3–4 May 2019 in Philadelphia, PA, USA. More than 70 individuals from many countries attended the conference, including patient representatives, advocacy groups, clinicians, and pure scientists.