Return of results and data to study participants: A recent report urges progress but builds barriers to research participants' access

Susan M. Wolf; Barbara J. Evans

doi:10.1126/science.aav0005

Return of results and data to study participants: A recent report urges progress but builds barriers to research participants' access

Susan M. Wolf, Barbara J. Evans

Academics (Law)

Research output: Contribution to journal › Article › peer-review

24 Scopus citations

Original language	English (US)
Pages (from-to)	159-160
Number of pages	2
Journal	Science
Volume	362
Issue number	6411
DOIs	https://doi.org/10.1126/science.aav0005
State	Published - Oct 12 2018

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Funding Information:
This workwas supported bytheNational HumanGenome Research Institute andNational Cancer InstituteoftheNational Institutes ofHealth (NIH)underaward numberR01HG008605. The content is solelythe responsibilityof the authors and does not necessarilyrepresentthe official views of thefunders or theviews of other membersofthe fundedproject.S.M.W.is a member of theNational Academyof Medicine,haspresented at a workshop held bythe committee producingthe Academies’ report on return of results,and served asa reviewer ofthe report,as thereport acknowledges.

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title = "Return of results and data to study participants: A recent report urges progress but builds barriers to research participants' access",

author = "Wolf, {Susan M.} and Evans, {Barbara J.}",

note = "Funding Information: This workwas supported bytheNational HumanGenome Research Institute andNational Cancer InstituteoftheNational Institutes ofHealth (NIH)underaward numberR01HG008605. The content is solelythe responsibilityof the authors and does not necessarilyrepresentthe official views of thefunders or theviews of other membersofthe fundedproject.S.M.W.is a member of theNational Academyof Medicine,haspresented at a workshop held bythe committee producingthe Academies{\textquoteright} report on return of results,and served asa reviewer ofthe report,as thereport acknowledges.",

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Return of results and data to study participants: A recent report urges progress but builds barriers to research participants' access

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