Scientific Registry of Transplant Recipients: Collecting, analyzing, and reporting data on transplantation in the United States

Susan Leppke, Tabitha Leighton, David Zaun, Shu Cheng Chen, Melissa Skeans, Ajay K. Israni, Jon J. Snyder, Bertram L. Kasiske

Research output: Contribution to journalReview articlepeer-review

146 Scopus citations

Abstract

Founded in 1987, the Scientific Registry of Transplant Recipients (SRTR) operates under a contract from the US government administered by the Health Resources and Services Administration (HRSA). SRTR maintains a database of comprehensive information on all solid organ transplantation in the US. The registry supports the ongoing evaluation of the clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, pancreas, and multi-organ transplants. Data in the registry are from multiple sources, but most are collected by the Organ Procurement and Transplantation Network (OPTN) from hospitals, organ procurement organizations, and immunology laboratories. The data include information on current and past organ donors, transplant candidates, transplant recipients, transplant outcomes, and outcomes of living donors. SRTR uses these data to create reports and analyses for HRSA, OPTN committees that make organ allocation policy, and the Centers for Medicare & Medicaid Services to carry out quality assurance surveillance activities; SRTR also creates standard analysis files for scientific investigators. In addition, SRTR and OPTN produce an Annual Data Report and provide information upon request for the general public. Thus, SRTR supports the transplant community with information services and statistical analyses to improve patient access to and outcomes of organ transplant.

Original languageEnglish (US)
Pages (from-to)50-56
Number of pages7
JournalTransplantation Reviews
Volume27
Issue number2
DOIs
StatePublished - Apr 2013

Bibliographical note

Funding Information:
The first successful kidney transplant in the US was performed in 1954. However, large numbers of transplants were not performed routinely until the late 1960s ( Table 1 ). In 1969, the Southeastern Regional Organ Procurement Program (SEROPP) was formed to help transplant centers procure organs. One of the seven original organ procurement programs funded by the US government, SEROPP subsequently became the Southeastern Organ Procurement Foundation (SEOPF), the precursor to United Network for Organ Sharing (UNOS).

Funding Information:
This work was conducted under the auspices of the Minneapolis Medical Research Foundation, contractor for the Scientific Registry of Transplant Recipients, as a deliverable under contract no. HHSH250201000018C (US Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Division of Transplantation). As a US Government-sponsored work, there are no restrictions on its use. The views expressed herein are those of the authors and not necessarily those of the US Government.

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