Seizures and pain uncertainty associated with parenting stress and rett syndrome

Breanne J. Byiers, Raymond C. Tervo, Timothy J. Feyma, Frank J. Symons

Research output: Contribution to journalArticlepeer-review

12 Scopus citations


Data were collected parenting stress, adaptive behavior, pain, and health issues from the caregivers of 35 girls and women with Rett syndrome (mean age = 20.3). A majority (60%) of parents reported stress in the clinical range on at least 1 subscale of the Parenting Stress Index-Short Form. Seizures and uncertainty about their daughter's gastrointestinal pain experience were significantly associated with higher levels of parenting stress. No other child factors (adaptive behavior, age, residential status) were significantly related to parenting stress. Factors related to chronic health concerns (seizures, ambiguous pain presentation) may be important when considering family stress issues in relation to general outcomes for girls with Rett syndrome and related developmental disorders.

Original languageEnglish (US)
Pages (from-to)526-529
Number of pages4
JournalJournal of Child Neurology
Issue number4
StatePublished - Apr 2014


  • Rett syndrome
  • caregivers
  • pain
  • parenting stress
  • seizures


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