International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access

Rebecca Branum, Susan M. Wolf

Research output: Contribution to journalArticlepeer-review

9 Scopus citations

Abstract

Returning genetic research results to relatives raises complex issues. In order to inform the U.S. debate, this paper analyzes international law and policies governing the sharing of genetic research results with relatives and identifies key themes and lessons. The laws and policies from other countries demonstrate a range of approaches to balancing individual privacy and autonomy with family access for health benefit, offering important lessons for further development of approaches in the United States.

Original languageEnglish (US)
Pages (from-to)576-593
Number of pages18
JournalJournal of Law, Medicine and Ethics
Volume43
Issue number3
DOIs
StatePublished - Sep 1 2015

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