Bibliographical noteFunding Information:
Preparation of this article and symposium was supported in part by the National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) grant 1R01HG008605 on “LawSeqSM: Building a Sound Legal Foundation for Translating Genomics into Clinical Application” (Susan M. Wolf, Ellen Wright Clayton, Frances Lawrenz, Principal Investigators). The contents of this article are solely the responsibility of the authors and do not necessarily represent the views of NIH, NHGRI, or NCI.
The articles in this symposium grow out of a conference on March 8, 2017, on “The Future of Informed Consent in Research and Translational Medicine: A Century of Law, Ethics & Innovation” and a conference the following day on “The Challenges of Informed Consent in Research with Children, Adolescents & Adults,” both held at the University of Minnesota. The first conference was sponsored by the University’s Consortium on Law and Values in Health, Environment & the Life Sciences and supported in part by NIH, NHGRI/NCI grant 1R01HG008605, as noted above. The second conference was sponsored by the University’s Consortium on Law and Values, Office of the Vice President for Research, Human Research Protection Program, and Masonic Cancer Center. Both conferences are archived on the Consortium’s website at https://consortium.umn.edu/news-events/events. Thanks to Audrey Boyle for outstanding coordination of this published symposium.