Youth report of healthcare transition counseling and autonomy support from their rheumatologist

Courtney Kellerman Wells; Barbara J. McMorris; Keith J. Horvath; Ann W. Garwick; Peter B. Scal

doi:10.1186/1546-0096-10-36

Youth report of healthcare transition counseling and autonomy support from their rheumatologist

Courtney Kellerman Wells, Barbara J. McMorris, Keith J. Horvath, Ann W. Garwick, Peter B. Scal

Research output: Contribution to journal › Article › peer-review

16 Scopus citations

Abstract

Background: To increase understanding of the healthcare transition (HCT) process for young people living with Juvenile Idopathic Arthritis (JIA) by examining: 1) the extent to which youth report discussing HCT topics with their rheumatologist and 2) the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.Methods: Data are from an online survey of youth in the United States with rheumatologic conditions (n= 134). HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.Results: One third of the youth (33.7%) reported talking to their rheumatologist about transferring to adult medicine. Less than half (40.8%) of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter (22.0%) discussed acquiring health insurance as an adult. Nearly two-thirds of respondents (62.7%) reported that their rheumatologist usually/always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.Conclusion: The low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist's support for youth autonomy and HCT counseling suggest that developmentally " in-tune" providers may deliver the best guidance about transition planning for youth living with arthritis.

Original language	English (US)
Article number	36
Journal	Pediatric Rheumatology
Volume	10
DOIs	https://doi.org/10.1186/1546-0096-10-36
State	Published - Nov 14 2012

Bibliographical note

Funding Information:
This work was supported by the United States Health Resources and Services Administration, Maternal and Child Health Bureau through the Leadership Education in Adolescent Health Fellowship Training Program, [T71-MC-00006] to CKW and BJM); Agency for Healthcare Research and Quality [K08-HS015511, to PBS] and from the University of Minnesota-Academic Health Center Faculty Research Development Program [to PBS, AWG, KJH] This work reflects the opinions of the authors and does not represent the opinions or influences of any of the funding agencies.

Keywords

Adolescent health
Arthritis
Autonomy support
Chronic condition
Counseling
Healthcare transition
Young adult

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title = "Youth report of healthcare transition counseling and autonomy support from their rheumatologist",

abstract = "Background: To increase understanding of the healthcare transition (HCT) process for young people living with Juvenile Idopathic Arthritis (JIA) by examining: 1) the extent to which youth report discussing HCT topics with their rheumatologist and 2) the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.Methods: Data are from an online survey of youth in the United States with rheumatologic conditions (n= 134). HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.Results: One third of the youth (33.7%) reported talking to their rheumatologist about transferring to adult medicine. Less than half (40.8%) of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter (22.0%) discussed acquiring health insurance as an adult. Nearly two-thirds of respondents (62.7%) reported that their rheumatologist usually/always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.Conclusion: The low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist's support for youth autonomy and HCT counseling suggest that developmentally {"} in-tune{"} providers may deliver the best guidance about transition planning for youth living with arthritis.",

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note = "Funding Information: This work was supported by the United States Health Resources and Services Administration, Maternal and Child Health Bureau through the Leadership Education in Adolescent Health Fellowship Training Program, [T71-MC-00006] to CKW and BJM); Agency for Healthcare Research and Quality [K08-HS015511, to PBS] and from the University of Minnesota-Academic Health Center Faculty Research Development Program [to PBS, AWG, KJH] This work reflects the opinions of the authors and does not represent the opinions or influences of any of the funding agencies.",

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AU - Scal, Peter B.

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N2 - Background: To increase understanding of the healthcare transition (HCT) process for young people living with Juvenile Idopathic Arthritis (JIA) by examining: 1) the extent to which youth report discussing HCT topics with their rheumatologist and 2) the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.Methods: Data are from an online survey of youth in the United States with rheumatologic conditions (n= 134). HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.Results: One third of the youth (33.7%) reported talking to their rheumatologist about transferring to adult medicine. Less than half (40.8%) of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter (22.0%) discussed acquiring health insurance as an adult. Nearly two-thirds of respondents (62.7%) reported that their rheumatologist usually/always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.Conclusion: The low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist's support for youth autonomy and HCT counseling suggest that developmentally " in-tune" providers may deliver the best guidance about transition planning for youth living with arthritis.

AB - Background: To increase understanding of the healthcare transition (HCT) process for young people living with Juvenile Idopathic Arthritis (JIA) by examining: 1) the extent to which youth report discussing HCT topics with their rheumatologist and 2) the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.Methods: Data are from an online survey of youth in the United States with rheumatologic conditions (n= 134). HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.Results: One third of the youth (33.7%) reported talking to their rheumatologist about transferring to adult medicine. Less than half (40.8%) of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter (22.0%) discussed acquiring health insurance as an adult. Nearly two-thirds of respondents (62.7%) reported that their rheumatologist usually/always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.Conclusion: The low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist's support for youth autonomy and HCT counseling suggest that developmentally " in-tune" providers may deliver the best guidance about transition planning for youth living with arthritis.

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KW - Counseling

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KW - Young adult

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Youth report of healthcare transition counseling and autonomy support from their rheumatologist

Abstract

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